I am back to myself – fun with family and friends, working in a full-time job that I love!
Here is the story of the most bizarre thing that I have ever experienced ― 12 months of Long Covid.
Here is the story of the most bizarre thing that I have ever experienced ― 12 months of Long Covid.
Hi – It’s Kate here, from the UK. I have always been a trier. I tried hard at school, at Uni, at work, at losing weight, at baking the best cakes, at being a good friend, at going above and beyond… you get the picture! I was always wired, always on the go, never having time and always stressed about it! When all this trying eventually caught up with me, I was working three jobs and volunteering on four teams at my church.
As I’m sitting here, writing this letter, I feel incredibly grateful. I hope my story can serve as an inspiration to others.
From August 2017 until December 2018, I was bedridden and completely dependent on care. I was unable to stand upright or eat by myself. How did I get there?
It is like a zipper that you draw up slowly, tooth by tooth, until it is whole once more. This is a process one must learn and practice as one goes forward. You must create new experiences through success. This has nothing to do with ‘thinking yourself well again’, but rather understanding yourself well.
Hi, my name is Mette and I am the mother of a wonderful girl who now is 22 years old.
My daughter fell ill when she was 13.
The fear of symptoms makes them much worse, stronger, they last longer and steal all the focus. At least that was how it was for me. I got more tired because the fear stole all my focus, and I felt anxious all the time while I was waiting to feel better. The fear aggravated my symptoms.
It may seem like a miracle, as I went from being barely able to walk to the end of my street to running my usual 5k running route and 10 mile cycling route in the space of a week. I’m not as fit as I used to be, but confident I will now get back to where I was. (Just to put this into context) I was about to do the Edinburgh marathon when Covid hit, and had just finished a 60 mile bike ride when I caught Covid).
I was ill for a whole chapter of my life, which I simply cannot bear to describe. But today I am well.
Author: Woman Gradually my body ground to a halt, and I could feel the strength just seeping out of me. I was twenty and studying higher education. I was also an active athlete and wanted to focus fully on my … Continued
What do we do when we go through a living nightmare? When the people we love the most; our own children, fall seriously ill? If anybody had looked into the future and told me what my child would be going through, I would have said “I will never be able to deal with that”.
My name is Lotte, and I am 35 years old. I climb high mountains, I swim in the sea no matter the weather, I play with my son, I work, I hang out with friends, I sing, go to the movies and to concerts, to late-night dinners, and I love cooking and having guests over. I LIVE!
In the spring of 2017, our daughter came down with a fever, sore ears and was so weak she was unable to attend school.
My despair was overwhelming. The doctors gave me no hope of being able to recover from ME. On the contrary I remember a specialist saying: “You must lie down and rest, maybe for the rest of your life.”
Anxiety. Fear of the future. Sorrow. Insecurity. About three years ago, I did not know much about what these words could mean. We went to Greece on autumn vacation as a regular family of five in September 2017. A week later we were no longer a regular family, we just did not know it ourselves yet.
The hardest thing for me was that I had no idea how long I would be sick. Maybe the rest of my life. I wish that Google, the information I received and what patients were generally told could to a greater extent convey that one can actually get well.
At Haukeland Hospital, I was told that I had contracted a serious neurological disease, for which there was no cure.
This is my story as a mother of a sick child. She had Borrelia and meningitis. Then ME, but she recovered.
My life today involves very little pain and I have lots of energy. I am very energetic and can do more than just work. Energy to look after the people around me. I love my life and do what I want to.
The basic summary of the cause of my illness is a familiar one. As far as I believe, the cause was burnout, plus the trigger of a nasty flu bug at the same time. From this I never properly recovered, and things quickly spiralled out of control. However, looking back at my life with hindsight, it is easy to see that there was already a foundation of issues which were affecting my health, and paving the way for a future illness.
I wish someone would have given me the knowledge that I have today, that someone would have normalised my condition 13 years ago and said: “You’ll be fine. We have a support network that will help you get back on your feet.” Instead, I was left alone, left to stumble through an overwhelming amount of advice on what to do when you’re a CFS/ME sufferer. It cost me 13 years of my life and my children missed out on their teenage years. At this conference organised by Catosenteret rehabilitation centre, Anette tells her story. It’s a story that touched many people.
Author: Mother of a 12-year-old daughter I just got home from work. Our daughter is in school, at an activity day (!), and the house is quiet. Now is a good time for me to tell our story. It is … Continued
Since I got well again I have completed my medical studies within the normal timeframe and then worked as a doctor, full time, including night shifts of 19 hours, with no more fatigue than any of my colleagues, before making the decisive choice that life is too short to carry on with the hectic lifestyle that I was used to.
If your own brain, that part of the brain which you can’t access, is convinced that a bit of movement is very dangerous, what chance do you have without the right tools?
I have always been a girl who enjoyed being active. I went to the US for a year after high school and worked as an au pair. When I came back home in the summer of 2016 it only took me a couple of weeks before I started working again. For almost three months I even had two jobs.
The story starts at the end of 2014 when I came back to Russia after several years of living, studying, and working abroad. The first year of being back to Russia was kind of hard emotionally and it is hard to say why exactly.
In the first part of 2016 I was a social and active 20-year-old girl. I really enjoyed working as a personal trainer, I had a boyfriend, was frequently working out and generally happy about my life.
As parents, we are eternally grateful to the friend who made us dare believe it’s possible to recover from ME!
Life changed completely for our 10-year-old son in January 2018. He had always been a lively and happy boy who loved physical activity, a boy who loved playing football and hanging out with his friends.
I was 23 in 2013. I was travelling at least once a month; I was a student with three part-time jobs and had taken on various other duties. I was also working out and was very active.
It is almost six years since I first detected that something was wrong with my body. My life was stable and generally happy back then; I had a partner, my studies, and a network of good people. For years, I had enjoyed working out and exercising, as it gave me a boost of energy and put me in a good mood, but now suddenly I seemed to get some sort of ‘hangover’ when I’d been exercising; feeling exhausted, getting a slight ‘brain fog’ and generally feeling irritable for up to a week after a training session.
The Lightning Process (LP) is a disputed topic, and most of what you read about it, is negative. I was diagnosed with chronic fatigue syndrome (ME) myself. If I had believed all the negative things I read on the net, I would not have recovered.
Celina became ill in the autumn of 2017 at the age of 12. Until then she had been a very active young girl with lots of friends at school and at home. She was a keen footballer and active on the running track. Celina was always cheerful and happy with an infectious laugh.
I was once one of the most severely sick people in Norway diagnosed with ME in the period between 2006 and 2009. I will give a brief account of my story, how I fell ill and how I got better and also what I think about it all today because that is actually the most interesting aspect; what I have understood today.
I fell ill after having had mononucleosis at upper secondary school – without knowing it. I noticed symptoms, but did not understand what was happening to me as I celebrated the end of school. This was in 2014.
Today Emil is a happy 18-year-old. He is in his last year of upper secondary school and is active in sports, which also includes coaching younger athletes. He has passed his driving licence and found a girlfriend, and as for what we, his parents, say and think, he cares just about as much as he ought to. This hasn’t always been the situation, however.
I here choose to write my story wishing that others may benefit from it, that it may provide hope of recovery for them. I am presently 54 years old, married and I have four adult children. I work as a therapist for students.
I’ve noticed a significant relationship between circumstances in my life, especially things that happened in my childhood, and my health.
“The only way to make ends meet is to burn the candle at both ends!”
(Written on the 20th of October 2016, but I do not publish it until I am a long way into recovery, so that no one thinks of it as a flash in the pan.)
Hi, my name is Hanne and now in 2019 I am 27 years old. Hoping that my story will bring courage and help to others, I would like to share it here. From 2006 to 2008, I was one of the most severe cases of ME/CFS in Norway. However, after two and a half years of illness, I actually recovered completely. What happened to me?
I first attended Lightning course as a relative and was generally very interested in the human mind and the human being on a whole. Body and head, yes, thank you, I`ll choose both.
I’m Tina Røe Skaar, I’m 24 years old, and I am living a life slightly outside the norm.
My perception of the condition we refer to as ME is that there are various causes for what is then given one diagnosis. It is a process, a spiral down into unwellness from various beginning events, which is ultimately diagnosed as ME.
I will tell you what happened when I fell ill with CFS/ME and then recovered.
My history starts in the fall of 2015, when I have headaches every single day. I have had extreme headache attacks in the past, but now it is constant and I need to take painkillers every day.
This is to you, you who stood by me when I was so very ill with ME. We have not spoken since. However, you, and many others, made such a difference in my life and I never really got to thank you.
After many years of working long days and putting my body through a lot of physical and mental stress as a management consultant and athlete, I was diagnosed with Mononucleosis in December 2013.
Camilla tried everything. After seven years of serious illness, she finally discovered a way to recover completely.
I developed ME after a bout of mononucleosis in the spring of 2003. This happened at a time where all events in my life were pointing upwards.
Many years have passed, I now have several children and work as a psychologist. If there is one thing I see more and more clearly, it is how much our emotions, thoughts and relationships affect our health.
A lot of people associate me with football and the fact that I was considered one of Norway´s greatest talents. However, the most interesting thing about me today is that, because of my experiences, I am among those who are most knowledgeable about ME, chronic fatigue syndrome. This condition is often viewed as deeply mysterious. It’s not a great mystery at all to me.
One day in February 2010 I felt ill, properly knocked out. I thought it was the flu and I might be off work for a few days. I got better and returned to work. But a few days later I was ill again, and this time I didn’t recover.
Our daughter contracted ME when she was only ten years old. We vividly remember the despair we felt as parents; that her life was put on hold for one year; the worst-case scenario that she would become just another number in the queue at the national welfare center; a bedridden teenager hibernating behind blackout curtains in a dark bedroom. Luckily, we managed to find a way out of the nightmare.
And that’s why the full story has to be told, so that you can think: If this person can do it, then so can I!
My body did not recover after infectious mononucleosis in 2006. At that time, I was only 16 years old. I got worse in 2018 and was on sick leave for long periods of time. In 2012, as a 22-year-old girl, I got the ME-diagnosis (serious degree)
To Mammi…
The infection came suddenly – like a bolt og lightning out of the blue. The Chronic Fatigue Syndrome, however, came tiptoeing, slowly but surely. It came to take away from me everything you might call an identity. And it succeeded. In the end I was no longer myself. I “was” a fatigue syndrome.
It was in February 1999, at the age of 55, that Nina first felt that her body did not function normally. After getting an ankle fracture in the slalom hill she got a persistent low fever and easily got sweaty and tired.